What is Pulmonary Fibrosis?

YOU bring us one step closer...

 

The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.

 

We are proud to serve as the leading patient advocacy organization of pulmonary fibrosis and are committed to funding research to find effective therapies and, one day, a cure. Your support of the PFF Walk program funds crucial research, elevates the profile of the disease, and sustains vital programs that help people with PF and their families live better lives.  

Your support helps us to provide important initiatives such as:

PFF Care Center Network

PFF Patient Registry

PFF Help Center

PFF Ambassador Program

PFF Support Groups

The PFF Summit

 

For more information about how your support impacts the pulmonary fibrosis community, please contact Jackie Williams, Director of Development and Special Events, at jwilliams@pulmonaryfibrosis.org or 312-224-4667

The public is unaware

IPF is five times more common than cystic fibrosis and Lou Gehrig’s Disease (or ALS), yet the disease remains virtually unknown (to general public and even among some physicians) and IPF receives a fraction of the research funding.

As common as breast cancer

Idiopathic pulmonary fibrosis (IPF) affects about 128,100 people in the United States, with about 48,000 new cases diagnosed annually.

Most cases misdiagnosed

Pulmonary Fibrosis can be difficult to diagnose. An estimated 50% of cases are initially misdiagnosed as another form of respiratory disease.